Shared Care Record, Diagnoses Wait times Staffing Annual Accs

Reference: 24-25038

Date response sent: 15/05/2024

Details of enquiry

1. This question relates to the London Care Record where patients’ records are shared around various areas (in and outside London).
   1. On what date were letters sent to patients requesting permission to allow their personal information / medical records to be shared, in accordance with GDPR, and giving them the option to opt-out?
   2. How many were sent and how many replied?
   3. What percentage of patients gave permission for you to share their medical records and personal information?
   4. What is your procedure when patients are harmed following sharing of inaccurate medical records?
   5. How can patients find out who has accessed their data
2. Private sector spending
   1. How much did the Trust spend on private sector healthcare and beds (for example, Southside Partnership including Certitude, Priory, Cygnet) for the last 5 years?
3. Diagnoses
   1. How many are on waiting lists across the Trust for assessment and diagnosis of the following conditions? How long until they can expect to receive an assessment? How long after that until they can expect to receive treatment?

– Autism
– Borderline Personality Disorder (EUPD)
– ADHD
– PTSD/cPTSD

1. How often are diagnosis of autism, BPD (EUPD), ADHD, PTSD/cPTSD added to a patient’s medical record without formal assessment and diagnosis and/or without meeting with a clinician?

4. Audited AccountsPlease provide links to the Trust’s audited accounts showing the income and expenditure of the Trust for the last 5 years.
5. Employees
   1. How many employees does the Trust employ at each grade?
   2. How many are employed in non patient-facing roles, eg reputation management, legal, PR, communications, media manager, commercial business partners etc?
   3. How many executive staff does the Trust employ including Directors, Associate Directors, Communication Directors, future Directors not yet in post that public money has been ringfenced for?

Response sent

1. This question relates to the London Care Record where patients’ records are shared around various areas (in and outside London).
   1. On what date were letters sent to patients requesting permission to allow their personal information / medical records to be shared, in accordance with GDPR, and giving them the option to opt-out?

Not applicable – explicit consent is not required for records to be shared but also see SEL-ICS-Privacy-Notice-SEL-London-Care-Record-v1.2.pdf (selondonics.org)

1. How many were sent and how many replied?

See our response to Question 1a above.

1. What percentage of patients gave permission for you to share their medical records and personal information?

See our response to Question 1a above.

1. What is your procedure when patients are harmed following sharing of inaccurate medical records?

There is no evidence that any patient has been harmed following sharing of inaccurate medical records, but this would be dealt with in line with the Trust Incident Policy, which is attached, for your information.

1. How can patients find out who has accessed their data

Patients can contact  the Trust Subject Access Request Team who can help with this

2. Private sector spending
   1. How much did the Trust spend on private sector healthcare and beds (for example, Southside Partnership including Certitude, Priory, Cygnet) for the last 5 years?

Nil Spend on beds

3. Diagnoses
   1. How many are on waiting lists across the Trust for assessment and diagnosis of the following conditions?
   2. How long until they can expect to receive an assessment?
   3. How long after that until they can expect to receive treatment?

– Autism

– Borderline Personality Disorder (EUPD)

– ADHD

• Autism: Our ASD diagnostic service is generally for 12- 18 years age group, though if a young person reaches 18 years of age whilst in treatment,  they are able to continue their treatment with our service until they are 25 years old.

There were 329 young people awaiting autism assessment.

The average waiting time for Autism Assessment for young people in 2023/24 was 67.5 weeks

The trust provides talking therapies, also known as psychological therapies, for autistic children, young adults and their families and for those with developmental learning disabilities. However, this is a separate pathway from our autism assessment service and requires a separate referral.

Therefore patient records of all those assessed does not continue straight to post diagnostic support and we cannot therefore report a linear figure for all those assessed.

Should you wish to submit a new request, we would be happy to supply you with waiting time data for referral to patient being seen in a post-diagnostic pathway.

• Borderline Personality Disorder (EUPD): The Trust does not provide a dedicated service for Border Personality Disorder and Diagnoses, though we may sometimes diagnose this in a patient’s secondary and/or pre-existing condition. As part of a psychodynamic formulative assessment/treatment approach, rather than a prescriptive psychiatric diagnosis of Borderline Personality Disorder
• ADHD: we do not have a department which specialises in, or specifically treats, ADHD in children or adults.
• – PTSD/cPTSD: We do  not assess nor record diagnosis of PTSD/cPTSD
  1. How often are diagnosis of autism, BPD (EUPD), ADHD, PTSD/cPTSD added to a patient’s medical record without formal assessment and diagnosis and/or without meeting with a clinician?

Not at all.  Diagnosis of autism, BPD (EUPD), ADHD, PTSD/cPTSD conditions would NOT be entered onto a patient record without the patient  seeing a clinician nor without formal assessment.  Such diagnosis would only be added to a patient’s medical record following a full assessment.

4. Audited Accounts

Please provide links to the Trust’s audited accounts showing the income and expenditure of the Trust for the last 5 years.

annual-report-and-accounts-2022-23/

annual-report-and-accounts-2021-22/

annual-report-and-accounts-2020-2021/

annual-report-and-accounts-2019-20/

Annual-Report-and-accounts-2018-19

5. Employees
   1. How many employees does the Trust employ at each grade?

1. How many are employed in non patient-facing roles, eg reputation management, legal, PR, communications, media manager, commercial business partners etc?

326 staff are employed in non patient-facing roles

1. How many executive staff does the Trust employ including Directors, Associate Directors, Communication Directors, future Directors not yet in post that public money has been ringfenced for?

26 Executive Staff, which includes Directors, Acting Directors, Associate Directors, the Board of Directors.