Skip to content
Contents

GIDS Referrals & Discharges Pre & Post 1st Assessment

Reference: 24-25409

Date response sent: 14/01/2025

Details of enquiry

  1. The number of patients who were newly referred to GIDS.
  2. The number of patients who left GIDS having received their first appointment with the service.
  3. The number of patients who left GIDS without receiving their first appointment while still seeking it (e.g. by passing the age of 18).
  4. The number of patients who left GIDS without receiving their first appointment because they no longer wanted GIDS or gender-related healthcare.

Response sent

Explanatory Notes about our response:

A. The Tavistock and Portman NHS Foundation Trust did not hold data by GIDS clinic location, as the GIDS did not differentiate its data by clinic location. GIDS service provision was nationwide and managed as one service with one waiting list. Individual clinicians would cover several GIDS clinic locations

B. The Trust holds GIDS Referral and GIDS Waiting List data from Financial Year 2001/02 to 2022/23, with the following *exceptions:

  • From July 2021: GIDS referrals from General Practitioners and other non-CAMHS/paediatric referrers were handled by Arden and GEM CSU on behalf of NHS England
  • From October 2022 all new referrals from any referrer were redirected to Arden & GEM CSU.
  • From 23 March 2023, The whole GIDS waiting list and all new referrals were managed by Arden and GEM. GIDS no longer held or managed the waiting list for GIDS, the Children and Young People’s Gender Dysphoria Services.
  • NHSE/I are now the data controllers for the AGEM Referral Hub. Should you wish to contact them directly to learn more about the referrals/waiting list that they hold, the relevant email address is contactus@nhs.net

C. We note your request that the data be provided in Excel format, however it has been provided as a csv file, in line with guidance issued by the Information Commissioner’s Office in order to mitigate risk to personal information. This Trust no longer provides data as excel spreadsheets/workbooks.

D. You will appreciate that this data involves low numbers, i.e. equal to or less than five. Were we to disclose the data requested it could potentially lead to identification or re-identification of the individual(s) concerned. Although the month and year alone are not personal data, we have also to consider whether other information that is already available, or may become available, to any member of the public, could be combined with the data requested so as to enable identification of the individual(s) concerned. We are, therefore, withholding this information under S.40(2) Personal Information and showing these low numbers as <5.

Section 40 is an absolute exemption under the Freedom of Information Act 2000, and does not require us to carry out the public interest test.

 

* GIDS Referrals Annually, by Financial Year

Q1: Annual Referrals to GIDS by Financial Year
Financial Year AFAB AMAB Not stated Total
2001/02 0 <5 0 <5
2002/03 <5 <5 <5 <5
2003/04 0 0 <5 <5
2004/05 0 <5 <5 <5
2005/06 <5 0 <5 6
2006/07 3 2 6 11
2007/08 11 <5 10
2008/09 13 15 17 45
2009/10 32 42 <5 <5+74
2010/11 59 76 <5 <5+135
2011/12 111 90 9 210
2012/13 176 118 17 311
2013/14 269 193 9 471
2014/15 427 264 0 691
2015/16 931 478 0 1409
2016/17 1379 602 <5 <5+1999
2017/18 1848 716 <5 <5+2564
2018/19 1999 735 19 2753
2019/20 1915 730 101 2746
2020/21 1533 716 152 2401
2021/22 1987 875 724 3586
2022/23 475 219 349 1043
Q2: Patients Discharges after at least 1 GIDS Appt
Financial Year AFAB AMAB Not stated Total
2009/10 <5 0 0 <5
2010/11 18 18 6 42
2011/12 37 29 <5 <5+66
2012/13 71 51 7 129 The Trust does not hold this data for years prior to 2009/10
2013/14 172 141 13 326
2014/15 169 99 5 273
2015/16 288 138 6 432
2016/17 529 247 <5 <5+776
2017/18 600 281 <5 <5+881
2018/19 899 350 6 1255
2019/20 1139 374 16 1529
2020/21 1086 386 27 1499
2021/22 401 115 <5 <5+516
2022/23 544 341 <5 <5+885
2023/24 125 121 <5 <5+246
Total 6079 2691 100 8870
Q3 and Q4: Patients discharged from GIDS without having been seen for an appointment Please note that the Trust did not track reasons GIDs patients were discharged without being seen under referral. The Trust confirms that it does not hold this data.
Financial Year AFAB AMAB Not stated Total
2005/06 <5 0 0 <5
2006/07 0 <5 <5 <5
2007/08 <5 <5 <5 <5
2008/09 <5 0 0 <5 The Trust does not hold this data for the years prior to 2005/06
2009/10 0 <5 0 <5
2010/11 8 10 8 26
2011/12 16 19 7 42
2012/13 <5 9 12 <5+21
2013/14 18 24 1 43
2014/15 28 19 <5 <5+47
2015/16 33 25 0 58
2016/17 112 69 0 181
2017/18 181 82 0 263
2018/19 248 120 <5 <5+368
2019/20 234 89 <5 <5+302
2020/21 199 78 10 287
2021/22 480 201 45 726
2022/23 2836 1124 213 4173
2023/24 762 290 37 1089
Total 5161 2167 345 7673

 

Downloads

Back to top